Factors influencing implementation of the survivorship passport: the IT perspective /

Catherine Chronaki; Eliana Charalambous; Giorgio Cangioli; Günter Schreier; Selina van den Oever; Helena van der Pal; Leontien Kremer; Anne Uyttebroeck; Bart Van den Bosch; Justas Trinkūnas; Jelena Rascon; Ruth Ladenstein; Vanessa Düster; Edit Bardi; Diana Walz; Anna-Liesa Filberd; Desiree Grabow; Thorsten Langer; Adela Cañete Nieto; Antonio J Orduña Galán; Marisa Correcher Palau; Giacomo Cavalca; Riccardo Haupt

doi:10.3233/SHTI220363

Title	Factors influencing implementation of the survivorship passport: the IT perspective /
Authors	Chronaki, Catherine ; Charalambous, Eliana ; Cangioli, Giorgio ; Schreier, Günter ; van den Oever, Selina ; van der Pal, Helena ; Kremer, Leontien ; Uyttebroeck, Anne ; Van den Bosch, Bart ; Trinkūnas, Justas ; Rascon, Jelena ; Ladenstein, Ruth ; Düster, Vanessa ; Bardi, Edit ; Walz, Diana ; Filberd, Anna-Liesa ; Grabow, Desiree ; Langer, Thorsten ; Nieto, Adela Cañete ; Galán, Antonio J Orduña ; Correcher Palau, Marisa ; Cavalca, Giacomo ; Haupt, Riccardo
DOI	10.3233/SHTI220363
Full Text
Is Part of	Studies in health technology and informatics.. Amsterdam : IOS Press. 2022, vol. 293, p. 161-168.. eISSN 1879-8365
Keywords [eng]	cancer survivors ; childhood cancer ; electronic medical records ; HL7 FHIR ; international patient summary ; paediatric oncology ; survivorship passport
Abstract [eng]	Compared to the general population, childhood cancer survivors represent a vulnerable population as they are at increased risk of developing health problems, known as late effects, resulting in excess morbidity and mortality. The Survivorship Passport aims to capture key health data about the survivors and their treatment, as well as personalized recommendations and a care plan with the aim to support long-term survivorship care. The PanCareSurPass (PCSP) project building on the experience gained in an earlier implementation in Giannina Gaslini Institute, Italy, will implement and rigorously assess an integrated, HL7 FHIR based, implementation of the Survivorship Passport. The six implementation countries, namely Austria, Belgium, Germany, Italy, Lithuania, and Spain, are supported by different national or regional digital health infrastructures and Electronic Medical Record (EMR) systems. Semi structured interviews were carried out to explore potential factors affecting implementation, identify use cases, and coded data that can be semi-automatically transferred from the EMR to SurPass. This paper reflects on findings of these interviews and confirms the need for a multidisciplinary and multi-professional approach towards a sustainable and integrated large-scale implementation of the Survivorship Passport across Europe.
Published	Amsterdam : IOS Press
Type	Journal article
Language	English
Publication date	2022
CC license

„Factors influencing implementation of the survivorship passport: the IT perspective /“