European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline /

Ismay A. E de Beijer; Roderick Skinner; Riccardo Haupt; Desiree Grabow; Edit Bardi; Andrea Beccaria; Adela Cañete Nieto; Samira Essiaf; Anna-Liesa Filbert; Hannah Gsell; Anita Kienesberger; Thorsten Langer; Patricia McColgan; Monica Muraca; Jelena Rascon; Ramona Tallone; Zuzana Tomasikova; Anne Uyttebroeck; Leontien C. M Kremer; Helena J. H van der Pal; Renée L Mulder; Dorothea Niehoff; Diana Walz; Friederike Erdmann; Claudia Spix; Simone Lightwood; Francesca Bagnasco; Giacomo Cavalca; Sara Oberti; Brigitte Nicolas; Ruth Ladenstein; Vanessa Düster; Maria van Helvoirt; Jurgen Lemiere; Marleen Renard; An Michiels; Ann-Kristin Kock-Schoppenhauer; Lea Hildebrand; Anke Neumann Anne-Katrin Jahnke; Justas Trinkūnas; Audronė Ciesiūnienė; Paulius Ragauskas; Julia Balaguer Guill; Maria Teresa Tormo Alcañiz; Antonio Orduña Galan; Marisa Correcher Palau; Lucas Cervero Beltrán; Vicente Pons Tamarit; Davide Saraceno; Alessandra Berti; Carlo Contino; Nikos Thomopulos; Giulia Stabile; Maria Franca Tomassi; Igor Zamberlan; Barbara Nichel; Günter Schreier; Dieter Hayn; Karl Kreiner; Stefan Beyer; Catherine Chronaki; Giorgio Cangioli; Eliana Charalambous; Alexander Degelsegger-Márquez; Gerald Gredinger; Kathrin Trunner; Florian Trauner; Anja Laschkolnig; Leontien Kremer; Heleen van der Pal; Saskia Pluijm; Selina van den Oever; Ismay de Beijer; Jessica Trollip; Emma Hardijzer; Jaap den Hartogh; Jeroen te Dorsthorst; William Sciberras; Carina Schneider

doi:10.1007/s11764-023-01493-z

Title	European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline /
Authors	de Beijer, Ismay A. E ; Skinner, Roderick ; Haupt, Riccardo ; Grabow, Desiree ; Bardi, Edit ; Beccaria, Andrea ; Nieto, Adela Cañete ; Essiaf, Samira ; Filbert, Anna-Liesa ; Gsell, Hannah ; Kienesberger, Anita ; Langer, Thorsten ; McColgan, Patricia ; Muraca, Monica ; Rascon, Jelena ; Tallone, Ramona ; Tomasikova, Zuzana ; Uyttebroeck, Anne ; Kremer, Leontien C. M ; van der Pal, Helena J. H ; Mulder, Renée L ; Niehoff, Dorothea ; Walz, Diana ; Erdmann, Friederike ; Spix, Claudia ; Lightwood, Simone ; Bagnasco, Francesca ; Cavalca, Giacomo ; Oberti, Sara ; Nicolas, Brigitte ; Ladenstein, Ruth ; Düster, Vanessa ; van Helvoirt, Maria ; Lemiere, Jurgen ; Renard, Marleen ; Michiels, An ; Kock-Schoppenhauer, Ann-Kristin ; Hildebrand, Lea ; Jahnke, Anke Neumann Anne-Katrin ; Trinkūnas, Justas ; Ciesiūnienė, Audronė ; Ragauskas, Paulius ; Guill, Julia Balaguer ; Alcañiz, Maria Teresa Tormo ; Galan, Antonio Orduña ; Palau, Marisa Correcher ; Beltrán, Lucas Cervero ; Tamarit, Vicente Pons ; Saraceno, Davide ; Berti, Alessandra ; Contino, Carlo ; Thomopulos, Nikos ; Stabile, Giulia ; Tomassi, Maria Franca ; Zamberlan, Igor ; Nichel, Barbara ; Schreier, Günter ; Hayn, Dieter ; Kreiner, Karl ; Beyer, Stefan ; Chronaki, Catherine ; Cangioli, Giorgio ; Charalambous, Eliana ; Degelsegger-Márquez, Alexander ; Gredinger, Gerald ; Trunner, Kathrin ; Trauner, Florian ; Laschkolnig, Anja ; Kremer, Leontien ; van der Pal, Heleen ; Pluijm, Saskia ; van den Oever, Selina ; de Beijer, Ismay ; Trollip, Jessica ; Hardijzer, Emma ; Hartogh, Jaap den ; Dorsthorst, Jeroen te ; Sciberras, William ; Schneider, Carina
DOI	10.1007/s11764-023-01493-z
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Is Part of	Journal of cancer survivorship.. New York : Springer. 2023, first published online, p. 1-11.. ISSN 1932-2259. eISSN 1932-2267
Keywords [eng]	Aftercare ; Cancer survivors ; Paediatric oncology ; Practice guideline ; Quality of life ; Short-term follow-up care ; Surveillance ; Survivorship ; Survivorship Passport
Abstract [eng]	Purpose: Childhood, adolescent and young adult (CAYA) cancer survivors require ongoing surveillance for health problems from the end of cancer treatment throughout their lives. There is a lack of evidence-based guidelines on optimal surveillance strategies for the period from the end of treatment to 5 years after diagnosis. We aimed to address this gap by developing recommendations for short-term surveillance of health problems based on existing long-term follow-up (LTFU) care guidelines. Methods: The guideline working group, consisting of healthcare professionals, parents and survivor representatives from 10 countries, worked together to identify relevant health problems that may occur in survivors between the end of treatment and 5 years after diagnosis and to develop recommendations for short-term surveillance of health problems. The recommendations were drawn from existing LTFU guidelines and adapted where necessary based on clinical expertise. Results: The working group developed 44 recommendations for short-term surveillance of health problems, which were divided into four categories based on the level of surveillance required: awareness only (n = 11), awareness, history and/or physical examination without surveillance test (n = 15), awareness, history and/or physical examination with potential surveillance test (n = 1) and awareness, history and/or physical examination with surveillance test (n = 17). Conclusion: The development of a guideline for short-term surveillance of health problems fills a critical gap in survivorship care for CAYA cancer survivors, providing much-needed support immediately after treatment up to 5 years after diagnosis. Implications for Cancer Survivors. This guideline will support healthcare professionals to provide appropriate follow-up care and improve the quality of life of CAYA cancer survivors.
Published	New York : Springer
Type	Journal article
Language	English
Publication date	2023
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„European recommendations for short-term surveillance of health problems in childhood, adolescent and young adult cancer survivors from the end of treatment to 5 years after diagnosis: a PanCare guideline /“